Allergy & Asthma Network is a multidisciplinary community of patients, caregivers, healthcare professionals and community stakeholders all dedicated to ending needless death and suffering due to asthma, allergies and related conditions. One of our core mission areas is research. Research often takes on many different forms, from qualitative market research to focus groups to rigorous, scientific drug development. No matter what the form, Allergy & Asthma Network is committed to giving you an opportunity to lend your voice.
Clinical Trials — Interested in participating in the latest research to find a new treatment or cure? Browse here to see clinical trials currently recruiting by Network partners across the country.
Decision Mapping — Much has changed since 1985 — or has it? This qualitative research project analyzes patients’ and healthcare professionals’ beliefs and behaviors to detect trends and better understand issues facing families with asthma and allergies.
|OPEN Asthma Survey –The Observations of Patient Experience in the Nation (OPEN) Asthma Survey was commissioned by the Allergy & Asthma Network and sponsored by Boehringer Ingelheim Pharmaceuticals, Inc. to explore current attitudes of healthcare providers and patients about asthma control with the goal of identifying areas for improvement. The survey included people living with asthma who were treated with daily prescription medicine, as well as healthcare providers who treat patients with asthma. The survey revealed several key disconnects:
Frequently Asked Questions
What are Clinical Research Trials and Why Do They Matter?
Clinical research trials not only advance scientific and medical knowledge, but also offer hope to other patients and families. Participating in a clinical trial helps you take an active role in your own health, and you may be given access to new prevention strategies and treatments.
Types of clinical trials:
- Treatment trials test new treatments, new combinations of drugs, or new approaches to surgery or radiation therapy.
- Prevention trials look for better ways to prevent a disease in people who have never had the disease or to prevent the disease from returning. Better approaches may include medicines, vaccines, or lifestyle changes, among other things.
- Screening trials test the best way to detect certain diseases or health conditions.
- Diagnostic trials determine better tests or procedures for diagnosing a particular disease or condition.
- Quality of life trials (or supportive care trials) explore and measure ways to improve the comfort and quality of life of people with a chronic illness.
- Natural history studies provide valuable information about how disease and health progress.
Clinical trial sponsors can include government agencies, healthcare providers, foundations or nonprofit organizations, pharmaceutical companies, insurance companies and medical device companies.
Learn more about clinical trials on the National Institutes of Health “Clinical Research Trials and You” webpage.
What Are Registries?
Registries collect health information from patients with a specific diagnosis or medical condition. Patients volunteer to provide information about their condition to the registry.
Registries provide healthcare professionals and medical researchers with information about patients in order to increase understanding of their condition. The data can be used to follow trends associated with the condition.
Learn more about registries from National Institutes of Health.
What are biorepositories?
Biorepositories (also called biobanks) store and disseminate biospecimens (e.g., blood samples for asthma) and related data. Scientists and medical researchers use the biospecimens and health data for clinical or research studies.
All information given by participants is kept confidential, with samples and health data typically coded by a number, not a name.